Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Living With Sickle Cell Disease Is a Constant Battle With Pain, According to one Woman Who Has It
“You don’t look sick.”
That’s something I hear all the time. It’s hard to get people to understand that I don’t look like what I’m going through.
I have sickle cell disease, a complex genetic blood disorder that affects the shape of red blood cells. People with sickle cell disease inherit an abnormal hemoglobin gene that prevents the proper delivery of oxygen to the body’s organs, which is why the form of the disease I have is also referred to as sickle cell anemia. The disease is characterized by unpredictable, severe, and painful events known as “sickle-cell pain crises.”
+myBinderRelated Content
-
Today’s Faces of Sickle Cell Disease: Linda Thomas WadeLinda Thomas is a health care educator, ...
-
SCDAA Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises[Hanover, Md., June 26, 2023] – The Si...
-
Successful utilization of an electronic pain diary in a multinational phase 3 interventional study in pediatric sick...Background: Patients with sickle cell a...
-
Individualized pain plans significantly reduce hospitalization in pediatric sickle cell patients with vaso-occlusive...Background: Vaso-occlusive crisis (VOC)...
-
Darryl Watkins Stays Positive in Spite of Sickle Cell DiseaseDarryl Watkins has the HbSS variant of s...
-
Kwamie Lassiter FoundationThe mission of the Kwamie Lassiter Found...
-
Students With Sickle Cell Disease Stay on Track With Help From St. Louis Children’s HospitalBrandon Gardner graduated Friday on sche...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
